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butterfly99
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Joined: 02/24/2010

Hi Gals, I was just reading this article on Endo, and I'm wondering...for those of you out there who have it, how were you diagnosed and what are your symptoms? I tend to be a bit of a hypochondriac, but definitely have a lof of these symptoms... maybe I'm just grasping at straws, but after 19 months of "unexplained infertility" it would be nice to have an answer.  My doctor doesn't seem to think it's worth checking, but I'm not so sure...
http://www.endo-resolved.com/symptoms.html

butterfly99
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Joined: 02/24/2010

well I talked to a couple people over the weekend and they think that my HSG would have shown signs of Endo, so that's probably why no further testing was done. ok, onto the next what if!

Ella
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Joined: 04/14/2010

hey butterfly, I have stage 4 endo (the worst possible) and didn't even know that I had it until I had surgery in Sept. During my 1st fertility Dr apt he did an internal U/S and everything looked good. It is possible to have endo and have it no where near your ovaries or uterus. It is an inflammatory disease that can cause your reproductive system to be compromised during vital times of the month. Typically you have painful periods (I don't) longer periods (I don't). You would only be able to tell you had endo during an HSG if it effected your tubes or ovaries (mine doesn't). I had exploratory surgery and what do ya know .... stage 4 endo. Surprise surprise! Apparently endo effects 1 in 6 TTC couples and most are un-diagnosed. The only way to let for sure that you have it is through lap surgery. Had my Dr not gone down that route we would still be trying with almost 0% chance of success. I think it is worth looking into... I believe that it can be hereditary , but not necessarily. I have the world most fertile family and then there is me....
Good luck girlie, keep at it Smile

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butterfly99
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Joined: 02/24/2010

Hi Ella, thank you so much!!!
I do (typically) have long-ish periods- I didn't when I was on the pill but now they are 6-7 days. I think my doctor is going to think I'm crazy, but maybe I am!! haha. This is good to know that it could still be something to consider... hope you are hanging in there too.

sepears1
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Joined: 06/20/2010

hi there!
I have been diagnosed with endo for around 4 years now. It is a very particular disease. Some women who have it, have no symptoms or pain at all, and others have lots of pain (as in my case Sad . It's hard for me to understand women who have it with no symptoms, because if you had the pain, you would know something was up! It does make me very worried because I've had two m/c and been ttc since feb. But then again, my mother has endo and popped out 3 daughters lol But if your doctor isn't supportive, I would definitely look into finding a different one. You can't diagnose yourself from a "list" so there's no harm in going in and getting it checked out. but the only way to diagnose it, is to have a lap.

butterfly99
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Joined: 02/24/2010

Thank you!! I'm sorry to hear about your m/c...that is so agonizing and tough... and I"m sorry it's so painful for you! Sad But your mom gives you hope so that is good!! I hope you get a sticky bean soon!
I think my doctor didn't want to test because she said it wouldn't matter- i.e you can still get pg w/Endo...but I would still like to know. I think if we don't get pg at the 2 year mark I will do some more testing. sigh.

sepears1
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Joined: 06/20/2010

I forget the exact statistic but there are MANY women who dont find out they have endo until they cant get pregnant, its the majority of them.

FMARTIN
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Joined: 02/08/2011

Hello, Butterfly

I have tried the Endo Diet in the Past. And It worked for me, the pain decreased a lot and I lost a lot of weight. I found out about it in my local library, just trying to get my hands on anything about endometriosis. There was a book written by a female doctor, in which she talks about how red meat, caffenie, wheat, and refined sugars put stress on our bodies and make pain worse. I noticed it was working , because when I varied off the diet my pain came back. Of course not like it was before but there was a bit of pain. I don't think you have anything to loose by changing your diet. If you doctor doesn't think diet is important in good health, maybe you need to find another doctor.

christyttc
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Joined: 01/19/2011

hmm...
my family doctor told me he "thought" i "might" have endo after performing a vaginal exam when i was sixteen. i came in to be examined because i was experiencing debilitating pain up to two weeks before my period every month and the bleeding usually lasted ten or eleven days. he said that since i was young and "healthy" he wasn't going to do any testing that required cutting or major expenses (like an ultrasound), but he'd put me on birth control to help the symptoms.
i'm twenty now and my husband and i have been ttc for a year with two chemical pregnancies and not much else. my cycles are always the same length and my period comes right on time, but it's painful as hell!
i've been skeptical about the treatment because i'm afraid some doctor will accidentally ruin me for life...
what does everyone think about the prognosis for treating the disease?
i want to improve the infertility and hopefully the pain...
(i also don't eat red meat or consume any caffeine, so that wouldn't help...)

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alice123
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